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Results: Marriage Equity for Disabled People in the US

Published on 02/19/2020
Anonymous
2294
Living
In the US it is not illegal for a disabled person to get married, as it once was. However, there are different types of penalties that can significantly affect a disabled person's quality of life. What happens when you are on medical/food/childcare assistance, but your household goes over the income limit by $50USD? You can lose all of it. What happens when insurance deems conditions "pre-existing" and they won't cover any of the treatment required to stay alive, and maintain quality of life?
1.
1.
Do you think there need to be safeguards and other resources to make sure the most vulnerable of people (sick/disabled persons) do not fall through the cracks [get sick(er) and/or die]?
Do you think there need to be safeguards and other resources to make sure the most vulnerable of people (sick/disabled persons) do not fall through the cracks [get sick(er) and/or die]?
Yes - US respondant
46%
1062 votes
No - US respondant
3%
60 votes
Undecided - US respondant
6%
142 votes
Yes - Canadian respondant
25%
577 votes
No - Canadian respondant
3%
62 votes
Undecided - Canadian respondant
4%
93 votes
Not Applicable
13%
298 votes
2.
2.
If this were a risk (being disabled/chronically ill + losing medical, food and/or other coverage by marrying, going over an income limit for assistance/services due to marriage but still need help, have a pre-existing condition that'd deem you "uninsurable, " etc) in your life, would you still consider marrying the person you love?
Yes
31%
705 votes
No
17%
387 votes
Undecided
32%
730 votes
Not Applicable
21%
472 votes
3.
3.
For some services, like in-home care (state's medicaid disability in the form of types of nursing care/care-taking) they will not do certain tasks (if i recall correctly--food prep, light cleaning or other small chores. Insurance is far more complicated, which means a lot of other people suffering), even if you can somehow prove that it is only benefiting you and not some able-bodied person(s), if you live in a shared space. So you wouldn't even have to be married. This means that if you are married/living with a partner (or roommate, even), anything that you as a disabled person can't do (or at least consistently or well enough) falls on that person. Being someone's caretaker is hard. Even more so if it's something you do on top of wage labor. For many disabled people it can be a relief to have familiarity and a loved one's help, but it starts feeling incredibly burdensome. Do you think you would attempt to live all alone to get the proper care that you needed if it meant having to leaving your marriage and/or home?
Yes
18%
420 votes
No
23%
526 votes
Undecided
36%
833 votes
Not Applicable
22%
515 votes
4.
4.
Do you agree or disagree: a lot of services & gestures done in the name of disabled/chronically ill people are more performative than sincere. The gestures are more empty than they are genuine, and done in good faith/meant to help people survive.
Yes
38%
870 votes
No
12%
283 votes
Undecided
50%
1141 votes
5.
5.
Do you agree that more needs to be done to make living (shopping, traveling, communicating in person/through text/on the phone, navigating the healthcare/insurance systems, ordering from restaurants, accommodations in academics & the workplace, finding proper housing, etc) more accessible to the disabled & chronically ill? If you include disabled people in planning society, everyone benefits. There wouldn't be all the "We can't afford to cater to disabled people" because accessibility would already be planned for and implemented. You never know if you're young to wind up disabled. It could happen to any of us. A lot of so-called attempts at accessibility are often shrouded by other peoples need for control and aesthetics.
Yes
47%
1077 votes
No
6%
148 votes
Undecided
27%
625 votes
Not Applicable
19%
444 votes
COMMENTS