How Much Is Your Life Worth?

Two young brothers, both with a deadly genetic disease, could face two very different futures because only one has access to cutting-edge medication. Andre Larocque, 8, and his younger brother, Joshua, 6, have cystic fibrosis. The relatively rare disease leads to the destruction of the lungs and an early death for most people who have it. There is no cure. Once lung function is lost, there is no way to get it back. Andre is on a medication called Symdeko through a drug trial, but Joshua wasn't selected for the trial and has no access to two similar Health Canada-approved medications. That's because the Ontario government doesn't fund the drugs for the vast majority of cystic fibrosis patients and his parents can't afford to pay out of pocket. The family can't afford the annual cost of $250,000. Their private health-care plan won't pay for it either. They are desperate for Ontario to cover the medication for their younger son. They say the criteria for who qualifies for coverage are too strict. The medication is only funded for children between the ages of six and 17 who are really sick for a long time — it's called the

Two young brothers, both with a deadly genetic disease, could face two very different futures because only one has access to cutting-edge medication. Andre Larocque, 8, and his younger brother, Joshua, 6, have cystic fibrosis. The relatively rare disease leads to the destruction of the lungs and an early death for most people who have it. There is no cure. Once lung function is lost, there is no way to get it back. Andre is on a medication called Symdeko through a drug trial, but Joshua wasn't selected for the trial and has no access to two similar Health Canada-approved medications. That's because the Ontario government doesn't fund the drugs for the vast majority of cystic fibrosis patients and his parents can't afford to pay out of pocket. The family can't afford the annual cost of $250,000. Their private health-care plan won't pay for it either. They are desperate for Ontario to cover the medication for their younger son. They say the criteria for who qualifies for coverage are too strict. The medication is only funded for children between the ages of six and 17 who are really sick for a long time — it's called the "exceptional cases" criteria. To qualify, a patient must show that they lost 20 per cent of their lung function for a six-week period over the course of six months. Under the rules, less than two per cent of children with cystic fibrosis qualify for coverage in Ontario, according to Cystic Fibrosis Canada. And Joshua isn't one of them. Have you ever been in a situation similar to this, where you could not afford a drug that could literally save your life (or at least drastically improve the quality of your life)?

Have you or your children ever participated in a clinical drug trial so that you could get a particular drug for free?

Have you or your children ever participated in a clinical drug trial so that you could get a particular drug for free?

A 38-year-old second-grade teacher and mom in Texas died of the flu this week after she'd delayed picking up her prescription medication because couldn't afford the $116 copay. By Friday night, Heather Holland's condition had worsened and she was taken to the hospital. She died Sunday morning. How can this happen here? Here are three common drugs that millions of people rely on, that are too expensive for some to afford. Are you in treatment for any of these?

A 38-year-old second-grade teacher and mom in Texas died of the flu this week after she'd delayed picking up her prescription medication because couldn't afford the $116 copay. By Friday night, Heather Holland's condition had worsened and she was taken to the hospital. She died Sunday morning. How can this happen here? Here are three common drugs that millions of people rely on, that are too expensive for some to afford. Are you in treatment for any of these?

05/14/2019 Health & Fitness 2374 70 By: Harriet56

Comments

Load more comments...
Loading...
Harriet56 profile photo
By: Harriet56